{"id":46327,"date":"2025-02-27T13:57:41","date_gmt":"2025-02-27T16:57:41","guid":{"rendered":"http:\/\/transparencia.camaracolombo.pr.gov.br\/?p=46327"},"modified":"2025-02-27T14:01:47","modified_gmt":"2025-02-27T17:01:47","slug":"camara-participa-do-1o-simposio-de-doencas-raras-de-colombo","status":"publish","type":"post","link":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/2025\/02\/27\/camara-participa-do-1o-simposio-de-doencas-raras-de-colombo\/","title":{"rendered":"C\u00e2mara participa do 1\u00ba Simp\u00f3sio de Doen\u00e7as Raras de Colombo"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><strong><em>Evento reuniu especialistas e representantes do Legislativo para debater desafios, inclus\u00e3o e pol\u00edticas p\u00fablicas voltadas \u00e0s doen\u00e7as raras.<\/em><\/strong><\/p>\n\n\n\n<figure class=\"wp-block-image\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"419\" src=\"http:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto2.jpeg\" alt=\"\" class=\"wp-image-46325\" srcset=\"https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto2.jpeg 1000w, https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto2-300x126.jpeg 300w, https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto2-768x322.jpeg 768w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">A <strong>C\u00e2mara Municipal de Colombo<\/strong>\nmarcou presen\u00e7a no <strong>1\u00ba Simp\u00f3sio de\nDoen\u00e7as Raras de Colombo<\/strong>, evento realizado pela <strong>Alian\u00e7a Paranaense de Doen\u00e7as e S\u00edndromes Raras<\/strong>. O encontro reuniu <strong>especialistas, educadores e representantes\nde associa\u00e7\u00f5es<\/strong> para debater os desafios enfrentados por pacientes e\nfamiliares, abordando temas como a <strong>import\u00e2ncia\ndo diagn\u00f3stico precoce, o papel da escola na identifica\u00e7\u00e3o de condi\u00e7\u00f5es raras<\/strong>\ne os avan\u00e7os em <strong>pesquisas gen\u00e9ticas e\ntratamentos<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">O <strong>presidente da C\u00e2mara, Joel\nBueno (PSD)<\/strong>, destacou a relev\u00e2ncia da iniciativa e a necessidade de\nmobiliza\u00e7\u00e3o para fortalecer o tema. \u201c\u00c9 essencial que diferentes setores se unam\npor um \u00fanico objetivo. O governo deve trabalhar para todos, mas, sobretudo,\npara aqueles que mais precisam. Hoje, s\u00e3o as pessoas com doen\u00e7as raras, e por\nisso devemos continuar promovendo eventos que incentivem a conscientiza\u00e7\u00e3o e o\ndebate\u201d, afirmou.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Os vereadores <strong>\u00c9lcio do \u00c1vi\u00e1rio\n(MDB), H\u00e9lio Feitosa (PL), Maicon Martins (PP), Osmair Possebam (PP)<\/strong> e o\nex-vereador <strong>Anderson Prego<\/strong> tamb\u00e9m\nparticiparam do evento, refor\u00e7ando o compromisso do Legislativo com a pauta da <strong>inclus\u00e3o e da amplia\u00e7\u00e3o de pol\u00edticas\np\u00fablicas<\/strong> voltadas \u00e0s pessoas com doen\u00e7as raras.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">O simp\u00f3sio contou com palestras ministradas por <strong>especialistas renomados<\/strong>, como <strong>Patricia\nShigunov (Fiocruz)<\/strong> e <strong>Dra. Ivy\nFurtado (FEPE)<\/strong>, al\u00e9m de <strong>rodas de\nconversa<\/strong> sobre o papel das associa\u00e7\u00f5es no apoio \u00e0s fam\u00edlias raras e os\ndesafios da inclus\u00e3o.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">A iniciativa destacou a necessidade de <strong>fortalecer a rede de suporte e ampliar o debate sobre o tema<\/strong>,\npromovendo a\u00e7\u00f5es que garantam <strong>mais\nassist\u00eancia e visibilidade<\/strong> para as doen\u00e7as raras em Colombo.<\/p>\n\n\n\n<ul class=\"wp-block-gallery columns-3 is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\"><li class=\"blocks-gallery-item\"><figure><a href=\"http:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto3.jpeg\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"603\" src=\"http:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto3.jpeg\" alt=\"\" data-id=\"46326\" data-link=\"http:\/\/transparencia.camaracolombo.pr.gov.br\/foto3\/\" class=\"wp-image-46326\" srcset=\"https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto3.jpeg 1000w, https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto3-300x181.jpeg 300w, https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto3-768x463.jpeg 768w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/a><\/figure><\/li><li class=\"blocks-gallery-item\"><figure><a href=\"http:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto1.jpeg\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"595\" src=\"http:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto1.jpeg\" alt=\"\" data-id=\"46324\" data-link=\"http:\/\/transparencia.camaracolombo.pr.gov.br\/foto1-3\/\" class=\"wp-image-46324\" srcset=\"https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto1.jpeg 1000w, https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto1-300x179.jpeg 300w, https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto1-768x457.jpeg 768w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/a><\/figure><\/li><li class=\"blocks-gallery-item\"><figure><a href=\"http:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto2.jpeg\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"419\" src=\"http:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto2.jpeg\" alt=\"\" data-id=\"46325\" data-link=\"http:\/\/transparencia.camaracolombo.pr.gov.br\/foto2-2\/\" class=\"wp-image-46325\" srcset=\"https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto2.jpeg 1000w, https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto2-300x126.jpeg 300w, https:\/\/transparencia.camaracolombo.pr.gov.br\/wp-content\/uploads\/2025\/02\/Foto2-768x322.jpeg 768w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/a><\/figure><\/li><\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Evento reuniu especialistas e representantes do Legislativo para debater desafios, inclus\u00e3o e pol\u00edticas p\u00fablicas voltadas [&#8230;]<\/p>\n","protected":false},"author":1,"featured_media":46330,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-46327","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias"],"_links":{"self":[{"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/posts\/46327","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/comments?post=46327"}],"version-history":[{"count":2,"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/posts\/46327\/revisions"}],"predecessor-version":[{"id":46331,"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/posts\/46327\/revisions\/46331"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/media\/46330"}],"wp:attachment":[{"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/media?parent=46327"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/categories?post=46327"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/transparencia.camaracolombo.pr.gov.br\/index.php\/wp-json\/wp\/v2\/tags?post=46327"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}